This Practice Note explores the data protection implications of conducting clinical research. In particular, this Practice Note considers the responsibility for data protection compliance in the context of clinical research, the relevant legal grounds for processing personal data for research purposes, transparency requirements, collaborative research and data sharing as well as exceptions to data subject rights when processing personal data in the context of research. Finally, this Practice Note provides a checklist of practical data protection considerations to bear in mind when planning research activities.
This Practice Note focuses on the data protection considerations and implications of mobile health (mHealth). mHealth is a subset of eHealth (ie the use of information and communication technologies for health) and refers to the use of mobile applications to allow users to monitor, evaluate and improve their health using their mobile devices.
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